Birthday week

Its been a long week. I had horrible back pain. The kind that is a 15 on a scale of one to ten.

The pain didn’t go way and got worse. So Dave and I spent Sunday in the emergency room.

I had blood drawn, another ct without contrast and a VQ scan. My last ct with contrast was this past March 13.

The ct was fine stated my colon cancer had not returned. The word report needs redone. My AVM has gotten so big it was called something I was not born with.

But that’s another story.

I ended up spending Sunday in the hospital and was discharged early Monday evening.

The discharging doctor stressed I see the spinal surgeon for pain management and my pain is in a different place than the old break from the ct scan.

As far as I know I only broke my back is a car accident when I was 16. Currently I am over 50.

This doctor said he had everything set up for my appointment this week.

Well I got an appointment for tomorrow right down the street from where I live.

But they need a copy of the ct from the 13th. Yesterday I called attempting to get my ct on a disk for the appointment tomorrow.

I was told I had to go downtown Cleveland to pick it up if it was ready and there was a charge.

This morning Dave had blood drawn and we talked to a really nice lady in the records room. She could have made my copy in 45 minutes.

We will be back tomorrow to pick it up.

Now I remember another PTEN contact blogging she gets what she needs to get done for copies of scans before leaving.

I will know better next time.


One Cold Week

Warmer days

Warmer days

Boy oh boy has it been cold! The last time I looked we were in the middle of a heat wave at 29.

Tonight I have plans to uncover my car and get groceries.  Target and Wal-Mart here we come.

Daisy needs dog food and Target has the best prices. The list is close to done. This weekend I am attempting to make sausage and peppers that go over spaghetti.

I found the recipe in my newest Weight Watcher cook book. Trying new recipes is something I want to do for the new year.

 I wanted to do this year was in my own small way advocate more. So I looked into turning the Cleveland Tower blue sometime time in March.

March is colon rectal awareness month. They wanted two professional signs. That I do not have. I do have the opportunity to be in a video about hereditary colon cancer.

It would be me holding a paper about Cowden’s Syndrome, and colon cancer. My new internet friend talks about defying your genes.

I had the information about my genes but did not use it.

Maybe its the really cold weather, or maybe  it’s really close to a year since my last procedure, I have been in a lot of pain.

For the last couple of months I have been trying to stay ahead of the pain. But like anyone with an AVM will tell you it throbs, lately its throbs really bad.

Two nights ago it was so bad I had trouble getting to sleep. Last night was a lot better. The temperature was above zero and I was really tired from the night before.

My thyroid medicine was getting really low. So I got out my new prescription. That prescription was the wrong dosage. I was suppose to continue on the same dose. So yesterday

morning after not sleeping well I talked to the nurse on call. After the wait on hold and ten minutes of explaining she finally understood. Thyroid doctors office called this morning.

They sent in a new prescription. I just got off the phone talking with another nurse about getting a new prescription for my pain medicine. My pain medicine is a non narcotic low dose med.

Over the counter pain meds do not help any more.

Ss what do I start drawing last night some of my medicine bottles. I got out the watercolors this afternoon. I’m not finished but so far they look pretty good.

Its kind of funny what lots of pain and cold weather will inspire me to draw.