For a long time I have wanted to do some advocating. Affordable Healthcare is something I am very interested in.

Early on I sent tweets and emails to my congress representatives. I got form letter replies. That was discouraging. The Pulmonary Hypertension suggested to invite someone from DC to speak at the support group I have been to twice. Plans are in the works for that to happen this time next year.

The pulmonary hypertension association along with NORD have advocacy suggestions on their websites.  PH Association asked for emails they could take directly to the senators.  I appreciate knowing Senator Portman got that one. My concern is what type of affordable healthcare will there be when my husband retires. All of my health issues make me a preexisting condition. This year makes me a three-time cancer survivor.

I even tweeted President Trump. The next day I was blocked by President Trump. It took me a long time to figure out how to vote. Toward the end of the campaign Trump asked the people of Ohio to vote for me what do you have to lose? Last week I had an answer. I reminded Mr Trump of his tweet and answered I would lose affordable healthcare.

Now I’m not a mean hateful person. Im someone who was raised to be polite. Every day we hear about his tweets. All I did was answer one that bothered me for a long time and I was blocked.

At least I know someone read that one.

My hope is to figure out whats next in my advocating. I would like to attempt something small for rare disease day. Who knows.