I am tired

I am tired. December was a long month.

The first part of December I had a surgical biopsy to remove a growth on my left breast.

 Sometime after my October mammogram I found a growth on my left breast.

In 2002  I had breast cancer in the left breast. Part of my treatment was radiation.

The growths are in the skin not part of the breast and what can happen to skin that is radiated.

I saw the surgeon the beginning of November. We scheduled the biopsy for the first part of December.

Before being put to sleep I showed my surgeon a skin tag she said to remind her to remove.

My surgeon looked handed a pen to sign off on another growth that had gotten bigger I the month she had seen me.

That was a first for me. When all was said and done. I was fine. The lumps are atypical lesions or lymphangioma.

Fast forward to December 24th. Dave’s children and families came to our home for Christmas Eve.

His granddaughter is almost two. So while the adults were talking to each other I placed with her.

That was fun, long day but fun. We got pizza again so I didn’t have to cook.

Add to our holiday time we went to an out-of-state wedding. The wedding was on December 28th.

This time I flew without getting hurt. We saw my daughter and enjoyed the wedding. I had an eight-hour wait in the airport for the flight home.

My plane was delayed about forty-five minutes but made good time getting to Cleveland.

In between presents I had to get an outfit for the wedding. First time I bought anything right off the display

For me part of traveling is spacing the water pills so I am near a bathroom when I need one..

Since colon cancer I have limited the junk I eat while traveling too. Don’t want to get sick.

As of January 1st we had a new prescription plan.  I had ordered my Adcirca, picked it up with two hour left in 20014.

Adcirca is my pulmonary hypertension medicine. Our drug store charges 400 a pill. I take two pills a day.

After looking on line the new company does not fund my Adcirca. After a call to my doctor The nurse said I am number 5 with the same problem.

All that will work out.

I am working on something for the upcoming art exhibit. So far thats looking pretty good.

Waiting

Waiting

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Another one

 In 2002 long before  Cowden’s Syndrome I had early stage breast cancer in the left breast

The breast cancer was treated with a lumpectomy radiation and five long years of horrible medicine.

Eleven years later I get these purple lumps in my radiated breast. Theses lumps appear, continue to grow and are tender to the touch.

 Last Halloween I had a lump under the left breast. Everything came back ok.

This time I had a mammogram in early October. Everything was good.

Since I had a mammogram less than a month ago I didn’t need another one.

But the ultrasound of the lump said its the same thing I had last year.

The surgeon called the lump an atypical lesion that has to come out. So I have an outpatient procedure Dec 6th to take the lump out.

The surgeons nurse agreed with Dave cancer doesn’t grow that fast.

But the lump still has to come out.

Tomorrow

I am not sure where to start. I haven’t written in a long time.

Maybe ten days to two weeks after my doctor’s appointment with the breast specialist, I was getting dressed and thought I felt something.

Now this is after having a good mammogram and the breast ultrasound.

So I felt again and there it was. This lump looked bruised and was on the breast.

A week went by and the lump is still there. I sleep on my stomach so it takes awhile to get comfortable.

Last week I called the breast specialist. I talked to her nurse. I  showed it to the cancer doctor during my appointment last Thursday.

He looked at it did an exam and said he had never seen anything like that before.

He got me a same day appointment with my breast surgeon. Her office called, canceled my appointment and suggested I see the breast specialist.

My breast specialist is out of the country. I tried seeing another doctor in her office once, she was nice, but didn’t want to see me because of the Cowden’s.

So tomorrow I have a mammogram, and breast ultrasound before seeing the breast surgeon. Dave says pretty soon I’m going to glow.

Should have wore my lucky pink underwear!,

 Yesterday was October 10th. Its breast cancer awareness month and I saw my breast specialist.

I saw her in July she did the exam. I was scheduled for a mammogram, but she wanted me to return in October to get back to having six month screenings.

That was ok mammograms are not fun so I rescheduled.

It’s a forty-five minute drive to her office. But she knows her stuff. I met her at a hereditary colon cancer awareness day two years ago.

Seeing her I can see the doctor, have the mammogram, ultrasound if needed and leave with an answer.

The techs that work there are really good.

So the doctor comes in. She is talking about this years colon cancer awareness day. I did not attend.

One hundred families attended but no one had Cowden’s.

Right in the middle of the breast exam she finds a lump. It’s on the left breast, the breast that had cancer.

The more she feels the lump, the more it hurts. She said it’s probably nothing but circles the lump and says they will do a picture of the lump.

I will have an ultrasound today of the lump just to make sure.  After getting a circle of the lump off I go to another waiting room for the mammogram.

After looking at two magazines it’s finally my turn. The mammogram is typical, but the extra picture hurts.

Then I go next door for the ultrasound. The ultrasound turned out fine. I heard my doctor checking on me as I was walking out, one of the last to leave.

She smiled and shook my hand.

One of the office workers has a service dog. I thought she trained service dogs. Yesterday I found out the dog is her service dog.

She was in the Army. I left the office knowing traffic would be terrible, but with good news.

I have worn pink underwear for all of my doctor’s appointment for a while. Theos appointments went well. No cancer scares.

Yesterday I didn’t wear the pink underwear. I had another cancer scare.

Monday I see the thyroid doctor. Yes I am wearing my pink underwear.

Ring the Bell

Shirt and bell from Race with Grace

Shirt and bell from Race with Grace

I came from a swimming family. So much so that one year my mom was the swim coach.

One thing she talked about but never got to do was fire the gun to start the race.

 Early Sunday morning  Sunday September 21 we rang the bell to start the race. .

 It was the tenth Race with Grace. The Race with Grace was started to honor a local woman who passed away of breast cancer.

She had three children.

The Race with Grace foundation helps families with basic living expenses while going through cancer treatment.

The foundation made a house payment in 2009 when I was going through colon  cancer treatment.

There help was really appreciated.

Dave and I met a lady whose husband had just passed of kidney cancer. The first woman mayor had just passed after her four-year fight with lung cancer.

Before the start of the race a bagpipes played Amazing Grace for everyone who had lost there fight with cancer.

My dad lost his fight with colon cancer in the 70’s. His friends started a race in his honor.

The whole thing got me a little misty.

It was an honor to be part of the tenth Race with Grace.

Doctors appointments!!!!

Lately I have been really frustrated with doctors, appointments, scans and anything medical.

Last week I had a CT scan. This CT scan was for my fifth year since being diagnosed with colon cancer.

I made it to the office on time, even brought paper and pencil to draw. The contrast looked clear and didn’t taste that bad.

 I ended up having a reaction to the contrast, had to call Dave to drive me home.  The nurse gave me a Benadryl.

From all my experience no news is good news. I had a big surprise,  my oncologist call the next day.

No cancer but I have a small intussusception of terminal ileum. This explains the symptoms I have been having.

The last thing he said was make sure to keep my appointment with him in May. Thats right before my colonoscopy.

Monday, Tuesday, and Wednesday I have appointments. Monday I have my breast MRI. This is my second breast MRI and the first was not fun.

Tuesday I see the dermatologist. This ones a follow up from six months ago. I ended up in the operating room to remove bumps from my breast.

Everything turned out good in that.  I have new bumps for him to remove. But the left breast never looked better.

Wednesday’s appointment is with the vascular surgeon. My AVM really hurts. The pain medicine helps some. Staying off the computer helps too.

How they all ended up in the same week I have no idea. It should be busy.

Don’t Get Mad Educate

After awhile I realized a comment I got is another good topic for a blog post. So….

Why did I start this blog?  Do I have way to much free time? Am I obsessed with my health?

I started the blog after some on-line people with Cowden’s Syndrome convinced me they were interested in my story.

 Cowden’s Syndrome means I have a muted P Ten gene. That gives me a higher chance of getting many different kinds of cancer.

If you are interested in the dictionary definition of Cowden’s Syndrome, please look it up.

People with CS have an 85% lifetime chance of getting breast cancer. At 42 I was diagnosed with early stage breast cancer. This was my first mammogram.

My sister looked shocked and really scared. I still remember her asking where did this come from?  Currently I rotate between breast MRI’s and mammograms.

This past October I had a breast biopsy because of radiation issues.

Most people with CS have thyroid issues. That can be anything from nodules on the thyroid to thyroid cancer. I have had way to many thyroid issues.

They began in the 70’s when I was 17 and my favorite choker didn’t fit.

1 in 200,000 people have Cowden’s Syndrome. Of those 200,00 eight percent will get colon cancer. You got I’m in that eight percent. My colon cancer was hereditary.

For me it meant surgery, chemo and a major chance in the way I eat. I am really close to my being NED for five years.

This doesn’t include the doctor check ups for my AVM. It’s really big and painful. Heaven help you if an issues comes up and you forget about a doctor check up.

When the first thing is taken care of the second turns into your next issue.

There are the little things two. Most hats don’t fit. I stare at anyone with a really cute hat. Especially in Cleveland weather.

Dyslexia is something you never out grow. Over the years I have gotten really good at hiding it. I don’t do math after 8 pm.

You would want to read a blog I wrote if I was really tired.  Can’t forget my trick to tell right from left, or where a stamp goes on the envelope.

I have a good life. Two of my pictures are in our library exhibit this month. They look pretty good.

Do Not Get Mad Educate!