2017

2017 started with doctors appointments. I had my six month appointment with the dermatologist. He is one of my favorites doctors. The staff is very nice. Doctor knows what he is doing. They are always on time. He has become the family skin doctor.

Two Monday’s ago I saw him.  Everything was ok till he got to my right cheek. He thought it possible could be a pre cancer or possible basal cell cancer. I needed a biopsy. I’m no stranger to biopsies. The doctor is good at them. If I have basal cell cancer this would be my third cancer.

So he finishes. The answer to all my questions is “We’ll be in touch” I wait till the following Monday,  call the office back. Tuesday morning a nurse calls. Doctor talked to the pathologist. Report is he’s not sure. Doctor wants to see. Saw doctor Friday afternoon. He did another biopsy on the same site says results should be back by Wednesday at the latest. Thinks he got everything this time.  Depending on the results I might need to see another doctor for further treatment.

I know with PTEN skin cancer  I am at a higher risk for skin cancer. Every year I buy sun block but forget to use it. With my large head size I have one ball cap that fits.

Treatment for pimples in my teens included time under a sun lamp and night cream that smelled like sulfur.

This summer I will use sun block not just buy it. Hopefully there is somewhere out there that has cute wide brim hats for summer.

Most important my hope is my family, friends will make a point to use sunscreen with me.

So What do We do Now?

For a while I have been attempting to shorten my list of doctors.My

doctors are educated nice people, but over a years time I see way to many

doctors. Part of this comes from three emergency visits and two hospital admits last year.

October of 2015 I saw the breast specialist had my mammogram, she

found something so I had the ultra sound. Ended up getting cream for the

nipple and a follow up in three weeks. Then ended up with a nipple biopsy.

Everything turned out ok, but its getting old. The breast specialist handed

me a paper to get an evaluation with a gyn oncologist. My appointment with him was yesterday.

Yesterday’s appointment turned out better than I thought.

The physicians assistant asked lots of questions. She said yes I was in the right place.

When the doctor came in he talked, about Cowdens and my risk to get a third cancer diagnosis.

He talked about options and how I can prevent a third cancer diagnosis. Then he asked for my questions.

 Dave was out in the waiting room so I asked if he could come in and have the doctor repeat Everything.

So in Dave comes and I get another chance to listen.

I could have my uterus removed and  be done with everything unless they found cancer.

I could have yearly screenings, or we could do nothing.

In my case I have been told many times no more surgery. So that one is out.

IMG_0115We ended up scheduling a biopsy in February.

Ok so what if someday they find cancer. I have a 28% risk. The doctors talked about options other than surgery.

First time I went to the Gyn doctor and got to keep my clothes on.

I left knowing its up to me.

2015

I have been busy finishing up a couple of pictures for the upcoming art show.

Animals again this year. Every year I have to learn have fun making the pictures.

The more fun a picture is to make the better it turns out.

The first picture is a bear.

My brother gave me a picture my grandpa had made of a bear and I thought this would go good with his.

I think both he and my grandma would really like that.

I finished the second one yesterday.

The second picture is our neighbors cat. While I was taking pictures of her flowers the cat came by me.

Dasher mewed wanted me to pet him. The poor cat was skin and bones.

Dasher passed away about a week later. He was a rescue.

So I did his picture to remember any pets that passed away in 2014.

It turned out really good. This weekend we plan on framing the pictures. Take in day for the art show is January 27th.

So I will post the pictures after take in day.

My next doctors appointment is my yearly CT scan because of colon cancer the middle of March.

A week after I see the oncologist to go over the results.

The skin doctor is at the end of March. So far I go twice a year and he removes something.

I have a new pulmonary hypertension doctor. He had never heard of Cowden’s, but is willing to learn.

I have an upcoming echo, blood word and six-minute walk when I see him in June.

He wants to talk about doing a right side heart cauterization again, so he has beginning numbers,

and to see if the adcirca is helping my pulmonary hypertension.  I have had two cauterizations since 2007.

Lately my fingers have been getting really cold. This starts around four pm.

Yes I know its January and  I live in Ohio so I should be cold. But My fingers get so cold they hurt.

I have started wearing gloves inside, taking them off right before bed. It seems to help.

My next art project is to make something for the twitter art exhibit.

I will post the finished project.

Tomorrow

I am not sure where to start. I haven’t written in a long time.

Maybe ten days to two weeks after my doctor’s appointment with the breast specialist, I was getting dressed and thought I felt something.

Now this is after having a good mammogram and the breast ultrasound.

So I felt again and there it was. This lump looked bruised and was on the breast.

A week went by and the lump is still there. I sleep on my stomach so it takes awhile to get comfortable.

Last week I called the breast specialist. I talked to her nurse. I  showed it to the cancer doctor during my appointment last Thursday.

He looked at it did an exam and said he had never seen anything like that before.

He got me a same day appointment with my breast surgeon. Her office called, canceled my appointment and suggested I see the breast specialist.

My breast specialist is out of the country. I tried seeing another doctor in her office once, she was nice, but didn’t want to see me because of the Cowden’s.

So tomorrow I have a mammogram, and breast ultrasound before seeing the breast surgeon. Dave says pretty soon I’m going to glow.

Should have wore my lucky pink underwear!,

 Yesterday was October 10th. Its breast cancer awareness month and I saw my breast specialist.

I saw her in July she did the exam. I was scheduled for a mammogram, but she wanted me to return in October to get back to having six month screenings.

That was ok mammograms are not fun so I rescheduled.

It’s a forty-five minute drive to her office. But she knows her stuff. I met her at a hereditary colon cancer awareness day two years ago.

Seeing her I can see the doctor, have the mammogram, ultrasound if needed and leave with an answer.

The techs that work there are really good.

So the doctor comes in. She is talking about this years colon cancer awareness day. I did not attend.

One hundred families attended but no one had Cowden’s.

Right in the middle of the breast exam she finds a lump. It’s on the left breast, the breast that had cancer.

The more she feels the lump, the more it hurts. She said it’s probably nothing but circles the lump and says they will do a picture of the lump.

I will have an ultrasound today of the lump just to make sure.  After getting a circle of the lump off I go to another waiting room for the mammogram.

After looking at two magazines it’s finally my turn. The mammogram is typical, but the extra picture hurts.

Then I go next door for the ultrasound. The ultrasound turned out fine. I heard my doctor checking on me as I was walking out, one of the last to leave.

She smiled and shook my hand.

One of the office workers has a service dog. I thought she trained service dogs. Yesterday I found out the dog is her service dog.

She was in the Army. I left the office knowing traffic would be terrible, but with good news.

I have worn pink underwear for all of my doctor’s appointment for a while. Theos appointments went well. No cancer scares.

Yesterday I didn’t wear the pink underwear. I had another cancer scare.

Monday I see the thyroid doctor. Yes I am wearing my pink underwear.

Getting back on track

I have been attempting to get back on track after a really busy and stressful couple of weeks.

Boy do I really miss Daisy my 10  year old rescued boxer mixed dog. We put her to sleep right around Father’s Day.

We had birds stuck in the chimney at first I thought I heard her. I do not want a new dog. I want my old dog back.

During the summer I walked  with her and Dave. So I have joined our local rec. center to get the exercise I miss not having a dog.

The rec. center is having a summer fit contest, today is the first day. I joined.

It took longer than I would have liked to recuperate from the PH Conference.

The 4th of July is our anniversary so we had lots of things planned. Starting with a doctor’s appointment with the breast specialist.

I am back on the breast screenings every six months. March was my second breast MRI. During the appointment the question came up

about having an 85% chance of breast cancer. The doctor nodded and went on to talk about why six month screenings are done.

She talked about what could happen if I had breast cancer again in the left breast. Not a conversation I want to have again for a long time.

I have been making an effort to do things I enjoy and hopefully make a difference.

I have three pictures to enter in our local county fair. This is a first for me. All three pictures are not animals.

One is a watercolor. The Band Perry will be at the fair. We have tickets.

 I want to advocate for pulmonary hypertension. In my part of Ohio no one knows what PH is.

My family reunion is in July. I plan on attending a high school class reunion the first part of August.

That is  something I have never did. My daughter said she would go to hers when I go to mine.

So I can’t chicken out.

Update

Anyone who reads this blog knows part of my Cowden’s syndrome is a very large AVM. The AVM started in my pelvis area.

It has gotten very big over the years. For a long time I was able to get the arteries worked on . My surgeon is no longer able to do anything for me.

She gave me prescriptions and referred me to pain management appointment is May 1. Who knows what they will attempt or if it will work.

Lately I have attempted to put more effort in doing things that make me feel better.

Right now I attempt to stay ahead of the pain with my current meds. I also spend as little time at the chair on the computer.

Who knows what it is about that chair but it is painful to sit in it and painful to get up. Most of the time my left leg is numb before I finish.

I also see the oncologist the beginning of May. He should go over the scan results again. It depends on when you start counting but I am really close

to the five-year mark with no recurrence.

We are hoping to get the scholarship to attend the PH Association at Indy the end of June. They pick the last applications at the end of the month.

George W Bush and I have the same style of painting. I send him an email of my prize winning dog picture and got an answer back today.

If anyone is interred Google George Bush paintings. He is currently having a one man show at his library.

I also have my colonoscopy coming up. Last week I bought the prep, hid it in the pantry and am attempting to forget.

True to form I am having symptoms again. This happens every year right before the scope.

I say a u tube video about different things to do while prepping . One suggestion was to paint your toes.

I can’t remember the last time I did that. So along with buying the jello, pop cycles and broth I plan on getting some nail polish.

Some of the over ideas sound a little to young for me. But who knows!