Why not just get rid of it?

Its been suggested that because of my high rick for cancer just get rid of it. Your know have surgery, take it out. Everything will be better without the risk right.

No, I have Pulmonary Hypertension. Pulmonary Hypertension is high blood pressure of the lungs. Take a look at http://www.SometimesItsPH.org

The site give a good definition of PH. I have many of the symptoms. Anyone can be diagnosed of PH. About half the people I met at the last convention are on oxygen. I have many PH symptoms but so far am not on oxygen.

I had complications with being put to sleep for surgery because of PH. My doctors have said its better for me to avoid surgery when possible. So I am not a candidate for any cancer prevention surgery.

I was diagnosed with pulmonary hypertension the same time I was diagnosed with right side heart failure. But thats another post.

A couple of sites

SometimesItsPH.org

PHAssociation

AmericanHeartAssociation

Check out heart failure on the American Heart Association site.

Advertisements

So What do We do Now?

For a while I have been attempting to shorten my list of doctors.My

doctors are educated nice people, but over a years time I see way to many

doctors. Part of this comes from three emergency visits and two hospital admits last year.

October of 2015 I saw the breast specialist had my mammogram, she

found something so I had the ultra sound. Ended up getting cream for the

nipple and a follow up in three weeks. Then ended up with a nipple biopsy.

Everything turned out ok, but its getting old. The breast specialist handed

me a paper to get an evaluation with a gyn oncologist. My appointment with him was yesterday.

Yesterday’s appointment turned out better than I thought.

The physicians assistant asked lots of questions. She said yes I was in the right place.

When the doctor came in he talked, about Cowdens and my risk to get a third cancer diagnosis.

He talked about options and how I can prevent a third cancer diagnosis. Then he asked for my questions.

 Dave was out in the waiting room so I asked if he could come in and have the doctor repeat Everything.

So in Dave comes and I get another chance to listen.

I could have my uterus removed and  be done with everything unless they found cancer.

I could have yearly screenings, or we could do nothing.

In my case I have been told many times no more surgery. So that one is out.

IMG_0115We ended up scheduling a biopsy in February.

Ok so what if someday they find cancer. I have a 28% risk. The doctors talked about options other than surgery.

First time I went to the Gyn doctor and got to keep my clothes on.

I left knowing its up to me.

Cold and Frustrated

 

quilt at conference

quilt at conference

I am cold and frustrated. Winter has finally hit Ohio and if it were up to me it could have stayed away.  We do not have a fenced in yard, so whenever the dog has to go out someone has to take her.It was 27 this afternoon when I took Bailey out. Bailey is our dog we got this past April at the age of 15. She is a border collie mix, sweet dog. Bailey is a really slow walker, has to sniff at everything. This past May Bailey turned 16. I didn’t want a puppy, wanted a dog who needed us. But on a good day it takes at least 30 minutes outside for Bailey to finish everything.

I have been inside over an hour and my hands are starting to hurt again. My fingers are still cold. I am typing wearing gloves.I found an old Christmas present of gloves with the fingers cut out to text with a mitten top for over the holes. They work really well. Hope they still make them.  One symptom of pulmonary hypertension is cold hands. Mine get worse in the winter.

Tomorrow I see a new doctor. Can not remember the last time I saw a gyn. My breast specialist referred me. I looked him up, among other things this doc speciality is hereditary cancer. A new doctor to explain my overgrown pelvic AVM too. I have been told some odd things about the pelvic AVM over the years. Lose weight and it will go away. The AVM causes no pain just looks different. Wrong!!!  Hope he is kind.