Between having a sick dog, my doctors appointments and getting ready to go to the PH Conference, I have been busy.
Bright and early Friday we are going to the Pulmonary Hypertension International conference.
This is my first time attending the conference. It should be educational and fun.
Part of the conference is the research room. Researchers from all over the country have the opportunity to talk to people with PH.
Two weeks ago I had an echo, did the six-minute walk and saw my PH doctor.
Friday I had three appointments at the main campus on the same day.
The tech doing my echo asked Dave if he wanted to watch. He smile and followed us to the room.
No one had ever offered him the opportunity to watch before. He got to see what the test was like and why it takes so long.
The six-minute walk was next. this was my third six-minute walk. I did about the same as the last one.
My doctor’s appointment was next. She did not have the results of the echo.
Dave asked what kind of pulmonary hypertension do I have?
The doctor explained I have Class one PAH with Cowden’s Syndrome and high volume heart failure.
She went on to say from her research, I am the only one.
So the doctors at the conference are going to want to talk to me. When I was little I use to say I am one of a kind, who knew.