Once Upon a Time

Hope its in the Genes

Hope its in the Genes

Once upon a time there was a conference on Cowden’s Syndrome.

This is your typical conference. Health care professionals come to get more knowledge and understanding of Cowden’s Syndrome.

Persons with Cowden’s Syndrome come to give health care professionals an understanding of what living with Cowden’s is about.

The conference was held in Nashville Tennessee on a weekend. That way my daughter can attend the conference, see her mom and learn about Cowden’s.

Everyone with CS I have met online would be about to attend. During the weekend we would attempt to have coffee and talk.

THe conference would have speakers with knowledge in breast, colon, kidney, skin, thyroid cancer.

Dr. E and J will update the group on research being done.  Persons with CS are able to talk to the group. Hopefully this gives the medical community

a better understanding of what its like to life with CS.

Attendees would be able to pick what speakers they heard, ask questions.

The conference would have an area for those 18 and under.

They  discuss  youth issues ex. what its like to miss school for doctors appointments.

Everyone makes a video for U tube about Cowdens. The video would go viral and be shown at the Super Bowl.

Come Monday morning people across the country are talking about CS.

The last night has great country music, dancing and good food. A vote is taken about the color for CS.

Plans are all ready in the works for a conference in Cleveland.

Everyone leaves hopeful.

Hopeful the next doctor they see has heard of CS. Hopeful because they met someone who understand what they are going through.

Hopeful about research being done and someday cancer will be a thing of the past.

 Why post this?  I am hopeful.This is fiction. But things are getting better.



  1. PS, I know you said you were looking/hoping for more readers. Do you have a chance to read/follow other blogs and like or comment on them? That might help get traffic back to your blog. Also, do you have your blog listed on your Gravatar Profile? That way, any blog you do comment on, if someone clicks on your profile they will see your blog link and hopefully come back here. 🙂

    • Thank you green is one of my favorite colors. I can’t think of any blogs right now. But I did run across a BRRS Facebook page. I’ll have to look for that. I think it was a foundation. There were lots of caring people looking for answers. Thank you for taking the time to read my blog. I was on your Pinterst board. The dermatology section posts were a good read. The hand pictures could be me.

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