Friday morning.

Cleveland Clinic in Black and White

Cleveland Clinic in Black and White (Photo credit: Wikipedia)

This Friday morning, I will be at Cleveland Clinic main campus bright and early.

To get everything things done in the same day I had to schedule the echo at 8:10 in the morning.

That means leaving the house before 7 hopefully to avoid downtown Cleveland rush hour traffic. Echo is one of the few tests I don’t mind having.

The office is usually on time, no needles and the pictures are still very interesting to look at even if I have no idea what I am looking at.

The doctor will have the results for my appointment at 10.

I see the lung doctor at 10. She is checking to see if adcirca is helping. Adcirca is the first PH medicine I have used.

I have not had an echo since being readmitted into the hospital this March.

Lately I have been tried. My cough is back.

So who knows. Hopefully the early morning appointments will give us a good start on Labor Day weekend.

I am attempting to be a guest blogger for the PH Association. They liked the idea of blogging about the connection between PH and my AVM.

First step to guest blogging was to sign up for gmail.

It took a couple of days to come up with a username. Who knew it would be that hard.


Women Helping Women

English: Forget-me-not flowers. Türkçe: Unutma...

English: Forget-me-not flowers. Türkçe: Unutma beni çiçekleri. (Photo credit: Wikipedia)

I think I have the girl scout sewing badge. But I can’t sew.

  The only thing I can do is sew on a button. As a kid my grandma did all our sewing.

Her house was one house away from ours.  Any sewing we needed done  grandma would do it. She would feed you those small powered sugared doughnuts while you waited.

I think my grandma helped me with  my unfinished eight grade sewing project.

So go figure I can’t sew.

The 5th Ever Bra-zeer Decorating Event is October 23.

This event raises money for cancer screenings for qualified Medina county women.

You pick a theme and decorate a bra.


Hope (Photo credit: mrsdkrebs)

Women helping Women is a theme brazier decorating contest.

The purpose is to raise money for cancer screening for local uninsured women.

I have the application and finally decided what I want to make. Now this is a theme contest.

This past week I saw the pictures of last year’s winners. Boy do I need to up my design. These ladies take bra art to a new level.

For a local elementary schools 100th anniversary someone entered a bra titled She is a Brick House. Yes the school is brick and looks like the school I went to.

At the library someone entered Fifty shades of Pink.  Check out Facebook to see a bra decorated with lifesavers made by the local health department.

Boy oh boy I hope my bra was in one piece last year. I was on crutches and unable to attend.

This year I want to use Hope its in their Genes, from global genes has my theme.

Along with a paper explaining rare diseases, Cowden Syndrome and the cancer risk that go with it.

Maybe have a pair of jeans with the bra.

Last night I went looking for supplies. There was lots of fall things and anything you wanted pink.

But not a lot of blue. I’m glad I have time to look.

This is the first time I have attempted any type of rare gene awareness.

So my first time will be local, art related and my theme is not well known.

Any thoughts or suggestions please!

*So if your interested check Medina County Women Helping Women on Facebook


English: Rose മലയാളം: പനിനീര്‍പ്പൂവ്‍

English: Rose മലയാളം: പനിനീര്‍പ്പൂവ്‍ (Photo credit: Wikipedia)

 It took a while but, I have finally figured out I was sad.

Last week I got an out-of-town call. At the beginning of June an old friend had passed away. It should not have surprised me,she was 85.

Her daughter was going through her phone book and called.

My friend was a friend when I was going through a major life change and needed someone who understood that.

She like me for me. I was in the middle of finishing my undergraduate degree, she helped me with a class assignment. The class was Family Living. Through that assignment I learned

what it was like for her growing up one of eight children. She talked about celebrating Christmas. Getting an orange was a great Christmas present when she was a girl.

Spring Flowers

Spring Flowers (Photo credit: Curtis Fry)

 How in her mother’s room there was always a crib because growing up in a large family there was always a baby.

She talked about the many trails she had raising her daughter and  reminded me to keep praying for my children. God is still with them.

My friend was in her 80’s and still swam.  I’m happy I knew her. Glad she is in heaven enjoying her reward.




As summer slowly turns to fall, I was inspired to create something different. This picture is very different for me.

The trout is done with colored pencils on watercolor paper. Probably the last time I used colored pencils was elementary school.

Not to bad, it makes me want to go fishing.

 It turned out better than I thought it would.


My sister's dog Emma

My sister’s dog Emma

I sent in the application to join our local county art league.

This is a pastel of Emma my sisters dog. I like adding lots of color.

She turned out really good. This is the last family dog. So I have been attempting to draw something other than dogs.

More picture to come.


echo on my lap

echo on my lap (Photo credit: rikrose)

 My search to find out about pulmonary arterial hypertension continues. I have never been someone who uses u tube very much. Dave says you can find anything on U Tube.

 I found videos  on u tube about pulmonary arterial hypertension. One video had a doctor speak about the basics of PH. how you get PAH. That I all ready know from my hospital stay in March.

I have primary pulmonary arterial hypertension. My vascular surgeon and a hospital resident said my PAH came from my AVM. The only cure for me would be to remove the AVM.

 My vascular surgeon said if the AVM is removed it would kill me. Her job is to control it. My current lung doctor said she doesn’t know where my PAH came from.

Another video told of symptoms and tests. Ok most of the symptoms I have or had in March.

I had the lung tests twice. The first time in 2007 I was told I failed the first test and could not continue. That was ok the technician was having an off day.

In March I completed all the lung tests. That technician was stunned about failing the lung tests. She said that was not possible.

The last test for me was the six-minute walk. The technician takes vitals hooks you up to something that measures your oxygen and you walk around two dots on the floor.

The six-minute walk test is one of the better tests i had in a long time, no prep or needles. So far I had the six-minute walk test twice. Both were about the same distance walked.

Today I  learned that test is used to see how well the medicine is working and if you need additional medicine.

I learned why the lung doctor scheduled another echo for  the end of August. Thank you Dr F.

Echo’s are my kind of tests, no needles, or bad preps. At Cleveland Clinic Main Campus Dr. F will have the results within an hour of completing the echo.

U Tube has an echo about PAH put to music. Its kind neat to watch!