I understand I why I have procedures on my AVM. Its gotten so big. Having the procedures the procedures help with the pain.
Dr S can no longer control the pain in the hip area. Having the procedure helps with the heart failure. I realize that she can not take the AVM out, its gotten way to big.
Now I understand why the procedure helps with the pulmonary arterial hypertension.
After some reasearch I realize some of my minor issues were PAH symptoms. I have a cough that doesn’t go away. For a long time I told doctors I had a smokers cough without ever smoking.
I avoid going up steps. Anymore than one flight of stairs I get dizzy, slow down and most of the time have to stop and rest. That gets old and can be hard at a public place.
Just like my grandma had I have cold hands. Awhile back our dog got loose. Then I noticed I couldn’t walk and call the dogs. It seemed odd at the time. There are times now I get really dizzy. This week the heat didn’t help.
All of this is symptoms of PAH. This past March I had to return to the hospital after a procedure. After lots of tests and another right side cardiac catheterization.
My pulmonary hypertension had changed to severe.
I ended up asking where the bathroom was.
Right by the bathroom I found the doctor and her student. They were looking for any published research on Cowden’s Syndrome and pulmonary hypertension.
The only published research at that time was a lady in France. Cowden’s Syndrome can be interesting at times.
I have completed the lung tests. She put me on a new medicine. My next appointment with the lung doctor is September.
So we hope to attend. I hope to learn enough about PH to do some guest blogging.
My AVM is one of the many things I deal with because of Cowden’s Syndrome. I see the heart doctor on the 29th.
This week I finally got the results of my bone scan. The bone mass on my left side is worse. So I was referred to another doctor.
The first available appointment was Oct 3. I also changed my appointment with the breast specialist. her next appointment is December 12.
I guess its gonna be a long winter.
- Pulmonary Hypertension Association (onedayonejob.com)