Cleveland Clinic called today and nobody wanted to talk about a bill. Dr. S office called this morning. Her scheduler has an unmistakable voice.
She said my schedule will be mailed.
The procedure on my AVM is scheduled for March 15 with me coming into the hospital March 14 for blood work and then being admitted to the hospital.
Ya I know the AVM will grow back. Dr S reminded me I’ll only feel better for a little while. Ya they say that every time.
After every CT I usually hope to see the pictures. My body, my pain so I should get to see what it really looks like. Well I changed my mind. This time she had CT pictures for a visual aide. I Googled pelvis CT and say what a normal CT looks like. True it
helped to see why the pain has gotten this bad. But I wish I doctor Google would not have been there. Ya I have heard do not look at doctor Google, wish I would have listened.
The second call from Cleveland Clinic was a person from the PTEN research. She said someone local wants to start a support group and would I be interested. Sure I was interested after I picked my jaw off of the floor.
So I never attended that group. I told the researcher about the Cowden blogs I had found.
I currently see a breast specialist who spoke at the workshop. At that time I was waiting for a biopsy of thyroid nodules and talked with the thyroid surgeon who spoke.