Awards

very-inspiring-blogger-award11

Thank you hopeforheather.wordpress.com  for the blog award.

Seven things about me.

  1. I finally figured out how to post this on my Apple.
  2. I really like boxer dogs. I currently have a part boxer rescued dog.
  3. I am disabled and really miss working at the Battered Women’s Shelter.
  4. I only sing when I am by myself in the car with all the windows rolled up.
  5. My hubby started calling me Tam while we were dating. It took a while big I like the name Tam.
  6. My brother and sister have seen my blog and had good things to say about it.
  7. I paint, draw, crochet and knit. Yes I enjoy anything creative. I hope to design a bracelet to donate for the 7000 bracelets for 20014 Rare Disease Day.

I am very new to blogging.  the few blogs I read you have all ready nominated.

I would like to give a thanks to:

hopeforheather.

beatingcowdens

For asking if I had a blog. When I started thinking about blogging I wondered if I had anything to say. They encouraged me to try.  Yes I am still learning. Sorry heather I changed the rules.

 

 

The rules are as follows:

1. Display the award logo on your blog.
2. Link back to the person who nominated you.
3. State 7 things about yourself.
4. Nominate 15 11 bloggers for this award….(*I changed this)
5. Notify those bloggers of the nomination by linking to one of their specific posts so that they get notified by ping back.
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Shamrock Shakes Are Back!

English: McDonalds' sign in Harlem.

English: McDonalds’ sign in Harlem. (Photo credit: Wikipedia)

Well I finally got around to updating the About Me page. For a long time I wasn’t sure what to write.

I never want this to be JUST  about what medical issue I was facing today. That gets really old really quick.

54/365 - Shamrock Shake!

54/365 – Shamrock Shake! (Photo credit: Photos o’ Randomness)

My daughter called today. She was excited McDonald’s in Nashville Tennessee  has shamrock shakes.

When I was little,  my grandma use to bring us shamrock shakes. Mom worked nights.

After she woke up she would grab hers and say these are really good I have never had one before.

Yes that was part of the tradition our small way to celebrate St. Patrick’s Day. I have not had a shamrock shake in a long time.

But I have started eating just a little bit of Ben and Jerry’s ice-cream.

Taking Care of Me

Children's Valentine, 1940–1950

Children’s Valentine, 1940–1950 (Photo credit: Wikipedia)

Its cold and people are going on vacation. We usually take a vacation  around the end of September. So I just have to wait for my turn.

Christmas morning I  decided we were taking a vacation February 14,  Valentine’s Day. We were going to see Mumford and Son in Paris. No I don’t speak French.

I am known as someone who doesn’t kid around either. It was a frustrating morning and that was my way to escape.

English: Paris Carnival parade, Valentine's Da...

English: Paris Carnival parade, Valentine’s Day 2010 (Photo credit: Wikipedia)

Yes I looked into it.  The more I looked into  going to Paris the more I found to see. Yes if I REALLY wanted to go we would have went.

My adult step children asked their dad if we were really going to Paris.  My adult children think its funny, daughter wants pictures.

Spring Flowers

Spring Flowers (Photo credit: El Frito)

Since the first of the year I have been looking at what can I do to take better care of me. I had all ready started scheduling my screenings. My Chart keeps sending you reminders, so how can anyone forget.

I do like to schedule something a couple of months ahead and forget it for a while. I see the GI doctor April 15 to schedule the colonoscopy.

That still sounds like a long time away. My upcoming procedure

will help me feel better for a little while.

Happy

Happy (Photo credit: Wikipedia)

Hubby’s first grandchild is due the end of March. We have an upcoming baptism. Still talking about where to go in September.

No we didn’t go to Paris, but I got a present I was not expecting.

Happy Birthday Mom and Andy

Happy Birthday to You!

Happy Birthday to You! (Photo credit: Wikipedia)

Happy Birthday Mom and Andy!  Andy  was born on my mom’s birthday. She passed away in 1998. So I have been thinking about my mom.

My mom was one of a kind and  had an opinion about everything. I was told from the time I was little she was never wrong, because she was my mom that’s why.

At our house there were chores for boy’s and chores for girl’s. The only inside job my brother did was wash the kitchen floor every Saturday. I hate washing the floor today.

Potatoes

Potatoes (Photo credit: Marj Joly)

 We started helping in the kitchen very young. I can remember learning fraction by measuring water for her during cooking. My sister and I could peel vegetables very young.

After a while we use to hide the better potato peeler. In high school during football season Friday’s were always chili. My sister helped me realize our mom was not a great cook.  I was a cook in the Navy.

Today my hubby and I practice Weight Watchers.

Boxer22

Boxer22 (Photo credit: Wikipedia)

She was a nurse. My dad passed away from colon cancer when I was 15, my sister was 14 and my brother was 13. My worked third shift. Mom was around for most of my health problems.

She made sure I had a tutor. Third grade was really hard, especially learning  multiplication and division. I had a horrible time with that, didn’t use flashcards again till studying in college.

Today I would tell you I don’t do any math past 8pm. Seventh grade was no picnic either. But I had my art. I painted just about anything. Mom had broken her foot, saved the cast for me to paint.

I entered the cast in our school art show. My cast was the talk of the show. I had our boxers. We had a two show quality dogs. I painted lots of boxer pictures. We breed one boxer and kept a puppy. I was able to show the dog in two shows.

Still do art and have my dog.

Kit shorts

Kit shorts (Photo credit: Wikipedia)

Remember the material they used to make shorts in the 70’s, that’s how I ended up at the GYN. He told mom I was born with my AVM. One of the few times Mom came close to saying she was wrong.

 We came home from vacation  with pucca shell necklace after visiting relatives. After awhile my necklace did not fit. That was the start of thyroid problems. Anyone who had thyroid problems in the late 70’s  had the really bad tastin medicine.

Mom had passed before breast or colon cancer. She came to help during my AVM surgery when my kids were little.

  Yes My mom had problems.

But she always remembered my son’s birthday. My daughter still talks about grandma taking them to their first marching band show. In the stadium they sat at the very top. Grandma had health problems but made it to the top for them.

She got them Massillon Ohio shirts. That was a big deal when you live in Alaska.  They laugh about her voting for Bill Clinton because they both had the same hair style.

So Happy Birthday Mom and Andy. I am way to young to have a thirty year old.

Rose

Rose (Photo credit: LeahLikesLemon)

 

Here we go!!!!

Cleveland Clinic called  today and nobody wanted to talk about a bill. Dr. S office called this morning. Her scheduler has an unmistakable voice.

English: Lagoon with statue, Cleveland Museum ...

English: Lagoon with statue, Cleveland Museum of Art, Cleveland, Ohio, USA. (Photo credit: Wikipedia)

She said my schedule will be mailed.

The procedure on my AVM is scheduled for March 15 with me coming into the hospital March 14 for blood work and then being admitted to the hospital.

Ya I know the AVM will grow back. Dr S reminded me  I’ll only feel better for a little while. Ya they say that every time.

Google 貼牌冰箱(Google Refrigerator)

Google 貼牌冰箱(Google Refrigerator) (Photo credit: Aray Chen)

After every CT I usually hope to see the pictures. My body, my pain so I should get to see what it really looks like. Well I changed my mind. This time she had CT pictures for a visual aide.  I Googled pelvis CT and say what a normal CT looks like. True it

helped to see why the pain has gotten this bad. But I wish I doctor Google would not have been there. Ya I have heard do not look at doctor Google, wish I would have listened.

The second call from Cleveland  Clinic was a person from the PTEN research. She said someone local wants to start a support group and would I be interested. Sure I was interested after I picked my jaw off of the floor.

I had been told support group meeting for people with hereditary  colon cancer. That group met a couple of times a year, 35 miles away and no one ever talked about Cowden’s Syndrome.

So I never attended that group. I told the researcher about the Cowden blogs I had found.

English: photo of someone wearing a Google NOO...

English: photo of someone wearing a Google NOOGLER hat. (Photo credit: Wikipedia)

Digestive Diseases did have an educational workshop I attended last spring. They talked about the high breast cancer risk for Cowden’s along with the updated screenings.

I currently see a breast specialist who spoke at the workshop. At that time I was waiting for a biopsy of thyroid nodules and talked with the thyroid surgeon who spoke.

 

I really don’t Like pictures BUT….

My Little Muppet

My Little Muppet (Photo credit: inju)

 Some time in my teenage years,   long before Cowden Syndrome was heard of, I had a loud talk with my mom about my AVM. I told her the AVM had always been there.

That was the reason for my first GYN visit. My first GYN visit confirmed for her that I was correct the AVM had always been there.

That doctor said I would have issues after childbirth. That first doctor was correct. I had no problem with my AVM till after having children.

I’m glad yesterday’s over and plans are in the works. Dr S has done many procedures since 2003. My husband use to call her doctor, she asked him to use his first name. I think my sister uses her first name too.

 This  time Dr. S had pictures of the CT. The pictures helped us see how large the AVM has gotten. She can help with the pelvis and leg AVM’s.

The AVM in my hip has gotten to larger for her to help. Dr. S said the relief she can give the pelvis are should help the hip.

Her new plan is to have me come in to the hospital a day before the procedure. That way all my heart related issues can be monitored. So I have an appointment with my heart doctor  the beginning of March.

White Flower Farms

White Flower Farms (Photo credit: pollyalida)

Right now this procedure is scheduled for March 15 with my going in the hospital on March 14.  So we left Cleveland Clinic, not needing to do the pre-op testing and with CT pictures.

I have all kind of medical issues so I really appreciated the pictures.

The pain has been bad enough that I have pain medicine. That is a first for me.

Sometimes it hard to know if the colon cancer is back, heart failure issues are getting bad again or I’m whining.

thank you

thank you (Photo credit: the|G|™)

 Thanks Dr S , the pictures help.

 

 

Cover of

Cover via Amazon

 

Remember the movie Groundhog Day?

Tomorrow is my version of Groundhog Day. This Wednesday will have a better ending.

I will get a CT scan of the AVM, procedure scheduled and in less pain.

I love you groundhog!

I love you groundhog! (Photo credit: Wikipedia)

 

I have another appointment with the  vascular surgeon at Cleveland Clinic Main Campus. This time  I will have the CT scan. Then see the surgeon, talk about the CT and schedule a procedure for the AVM.

We hope to get all the pre surgery test done tomorrow and schedule surgery within thirty days. That was more than planned last week. Dr. S now does procedures in the J Building where heart procedures are done.

So these doctors are used to seeing more than one problem at a time. If I have heart palpitations again, or any other problem these nurses have seen it before. I am very grateful.

 

English: A media event! Andie MacDowell with N...

English: A media event! Andie MacDowell with Nibbles on Groundhog’s Day 2008 Camera: Canon EOS Digital Rebel XT License on Flickr (2011-02-02): CC-BY-SA-2.0 Flickr tags: Andie MacDowell, Groundhog’s Day, groundhog, Asheville (Photo credit: Wikipedia)

 

I don’t remember the ending of the original Groundhog Day movie. But I should return home, tired but with answers.