How are you can sometimes be a loaded question. Yes I have medical issues. I am a wife, mother of two grown children, have a large dog, was in the US Navy, like to travel and started painting again.
I have Cowden Syndrome. Cowden Syndrome is a rare disease.
The short version of Cowdens Syndrome is I have a mutation in the PTEN gene. The mutation mean having higher chance of getting different kinds of cancers. More on that later.
My thyroid issues started in the late 70’s when a necklace would not fit. After many tests I had part of my thyroid removed. My thyroid problems continued during pregnancy. Over the years I had parts of my thyroid removed at least three times. Currently I have nodules on my thyroid, take thyroid medicine and am followed yearly.
I have AVM of the hip and pelvis. Issues started while pregnant. My AVM is the cause of my heart failure.
At 42 I was late getting my first mammogram. When everything thing was over I had early stage breast cancer. Because of radiation to the breast I have Cowden related skin problems.
I have colon cancer in my family and was the last sibling to get a colonoscopy. Life went on, I was having symptoms. But ended up in the emergency room with terrible back pain. After a week in the hospital, I had a blood infection and colon cancer. Dr’s thought it was stage 4 but it ended up stage 3C.
Currently my thyroid tests are good and I have an appointment in Dec of 2013. Tomorrow I have my MRI for the colon and meet a new doctor to go over the results. Vascular surgeon appointment at the end of the month to schedule a procedure. GI doctor is March my birthday month. Late March, early April I have my yearly colonoscopy. My colonoscopies come with pictures of polyps (last one had 32 polyps). Mammogram is scheduled in March sometime too.
This is just a piece of life for me. I am just getting started at blogging. So watch me learn to blog and you can see What’s up Cowden with me.